This video is required watching for anyone with an interest in eating disorders. Cynthia Bulik is one of the leading researchers in the field, and this interview, done by Jane Cawley, co-chair of Maudsley Parents, is compelling and important. Take a look.
Fighting Stigma with Science from Jane Cawley on Vimeo.
Showing posts with label Cynthia Bulik. Show all posts
Showing posts with label Cynthia Bulik. Show all posts
Sunday, September 21, 2008
Wednesday, January 09, 2008
Pop quiz
What's the first thing that pops into your head when you think about eating disorders? Or see someone who's clearly struggling with anorexia or bulimia?
A. "What a selfish brat--why doesn't she get a life?"
B. "What a dreadful illness this is--I know how much she's suffering"?
The answer most likely depends on what you know--or think you know--about eating disorders.
If you think they're emotional responses to trauma or lifestyle choices, you probably answered A. If think they're physiological diseases that are no fault of the patient and can't be chosen (or unchosen), you probably chose B. And you'd be correct.
As Cynthia Bulik, professor of eating disorders and psychiatry at University of North Carolina, put it, "“There is a lot of false information about anorexia nervosa disseminated in pop culture. This study suggests that even a nugget of accurate biological information can influence how health care professionals perceive the illness."
And not just doctors and nurses but real people, too, according to the experiment Bulik is commenting on. Attitudinal change comes hard, but it does happen. Read and rejoice.
A. "What a selfish brat--why doesn't she get a life?"
B. "What a dreadful illness this is--I know how much she's suffering"?
The answer most likely depends on what you know--or think you know--about eating disorders.
If you think they're emotional responses to trauma or lifestyle choices, you probably answered A. If think they're physiological diseases that are no fault of the patient and can't be chosen (or unchosen), you probably chose B. And you'd be correct.
As Cynthia Bulik, professor of eating disorders and psychiatry at University of North Carolina, put it, "“There is a lot of false information about anorexia nervosa disseminated in pop culture. This study suggests that even a nugget of accurate biological information can influence how health care professionals perceive the illness."
And not just doctors and nurses but real people, too, according to the experiment Bulik is commenting on. Attitudinal change comes hard, but it does happen. Read and rejoice.
Wednesday, April 18, 2007
There is no way to prevent anorexia
As I wrote the title of this post, I felt a wave of despair. Until a couple of days ago, I had never put this thought into words, never articulated it to myself. But it's true.
Two years ago I would have said of course you can prevent anorexia. I certainly never believed my daughter would develop it.
She was smart. She was funny. She was self-aware. She was eminently rational, and had been since toddlerhood. She watched no commercial TV. Her videos were carefully screened. She was a feminist before she started kindergarten.
Every kid in her sixth-grade class had to do a research paper on a subject of interest. She did hers on eating disorders. Looking back, I understand that that right there was a clue. At the time, I thought it made her safer because she had knowledge, she understood, and she was warned.
I thought that years of modeling a healthy attitude toward my own body would protect her. (I was fooling myself there, too, but I tried hard.)
But here's the thing: Nothing that she did or I did protected her from anorexia. Because there is no way to prevent an eating disorder.
If anorexia could be prevented, we wouldn't need to be talking about treatment. We wouldn't need to watch children suffer or families unravel.
I know from my own daughter's experience that knowledge does not prevent anorexia. She knew more about anorexia in sixth grade than many doctors do. She understood the dangers. More, she knew she was--as a gymnast and perfectionist--at risk. But it didn't help.
I'm all for the studies now being done on treatments for anorexia. They're long overdue. But where are the studies on prevention? Why is no one even asking the question of how to prevent anorexia and bulimia? Cynthia Bulik has looked at anorexia and twins--this would seem to be a perfect area of research for her.
We know that genetic predisposition plays a huge role in eating disorders. We know that environment can be a catalyst. How does the famous saying go? Genes load the gun and environment pulls the trigger. What we don't know is how to put the safety back on the gun. We'll never know until we start the scientific process of figuring it out: coming up with hypotheses, testing them, recording the results, making connections.
I've watched half a dozen young women I know--all of them bright, funny, well-read, engaging--fall prey to anorexia. I can look around at the young teenagers I know and predict, now, who's at risk. It's like watching a train wreck in slow motion.
Treatment is crucial. God knows we need better treatments for anorexia. Maudsley treatment is the best we've got so far, and it saved my daughter's life. I'm grateful. But it's not enough. Enough is when we can keep kids from becoming anorexic in the first place.
I don't have the answers. Maybe it's a combination of things: a vaccine, education, behavior modification in those at risk. I don't know. But I do know that until we start asking the question, we'll never find an answer.
Two years ago I would have said of course you can prevent anorexia. I certainly never believed my daughter would develop it.
She was smart. She was funny. She was self-aware. She was eminently rational, and had been since toddlerhood. She watched no commercial TV. Her videos were carefully screened. She was a feminist before she started kindergarten.
Every kid in her sixth-grade class had to do a research paper on a subject of interest. She did hers on eating disorders. Looking back, I understand that that right there was a clue. At the time, I thought it made her safer because she had knowledge, she understood, and she was warned.
I thought that years of modeling a healthy attitude toward my own body would protect her. (I was fooling myself there, too, but I tried hard.)
But here's the thing: Nothing that she did or I did protected her from anorexia. Because there is no way to prevent an eating disorder.
If anorexia could be prevented, we wouldn't need to be talking about treatment. We wouldn't need to watch children suffer or families unravel.
I know from my own daughter's experience that knowledge does not prevent anorexia. She knew more about anorexia in sixth grade than many doctors do. She understood the dangers. More, she knew she was--as a gymnast and perfectionist--at risk. But it didn't help.
I'm all for the studies now being done on treatments for anorexia. They're long overdue. But where are the studies on prevention? Why is no one even asking the question of how to prevent anorexia and bulimia? Cynthia Bulik has looked at anorexia and twins--this would seem to be a perfect area of research for her.
We know that genetic predisposition plays a huge role in eating disorders. We know that environment can be a catalyst. How does the famous saying go? Genes load the gun and environment pulls the trigger. What we don't know is how to put the safety back on the gun. We'll never know until we start the scientific process of figuring it out: coming up with hypotheses, testing them, recording the results, making connections.
I've watched half a dozen young women I know--all of them bright, funny, well-read, engaging--fall prey to anorexia. I can look around at the young teenagers I know and predict, now, who's at risk. It's like watching a train wreck in slow motion.
Treatment is crucial. God knows we need better treatments for anorexia. Maudsley treatment is the best we've got so far, and it saved my daughter's life. I'm grateful. But it's not enough. Enough is when we can keep kids from becoming anorexic in the first place.
I don't have the answers. Maybe it's a combination of things: a vaccine, education, behavior modification in those at risk. I don't know. But I do know that until we start asking the question, we'll never find an answer.
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